Welcome message

Dear friends,

The Global Sickle Cell Disease Network (GSCDN) is a community of sickle cell disease (SCD) clinicians, scientists and researchers committed to promoting collaborations to further research and education with a goal to advance clinical care of people with SCD globally, particularly in low and middle-income countries that shoulder the heaviest disease burden. GSCDN has partnered with local SCD experts to deliver three Global Congresses on SCD, the 1st in Accra, Ghana (2010), 2nd in Rio de Janeiro, Brazil (2014) and the 3rd in Bhubaneswar, India (2017).
GSCDN is pleased to partner with the French SCD Community to deliver the 4th Global Congress on Sickle Cell Disease on April 7- 9, 2020 at the UNESCO Headquarters in Paris. We are particularly delighted with the UNESCO Headquarters location as GSCDN and UNESCO have a shared mission to promote SCD education among patients/families, health care providers and policy makers as well as the general public.
The chosen theme for the Congress: “One Sickle-One World-One Voice’’ emphasizes the single origin and nature of the sickle gene mutation, the rapidly increasing connectivity of the world we live in and the compelling need to find one united and coordinated voice for SCD worldwide. While actively engaging in the recent progress made in finding new disease-modifying and curative therapies for patients with SCD, we need to double efforts to develop policies and systems changes to implement simple, effective and relatively affordable interventions that reach the large majority of patients who live in low-resource settings.
The GSCDN is pleased to invite the world SCD community (professionals, advocates, policy makers, patients and families) to Paris for a high-quality discourse on SCD including clinical care, scientific research, education and advocacy.
I look forward to seeing you in Paris, the “City of lights”, in April 2020.

Isaac Odame
Medical Director
Global Sickle Cell Disease Network
Chair of the Congress


ElionDear members of the SCD Community, it is with great pleasure that we invite you to participate to the 4th Global Sickle Cell Congress that will be held at the UNESCO House in Paris from April 7 to 9, 2020.
After having hosted its previous editions in Africa (Ghana), America (Brazil) and Asia (India), the 4th Global Congress will take place in Europe, as an illustration of the trans-continent global dimension of SCD.
In 2005, together with the African Union, UNESCO was the first International Agency to recognize SCD as a global health issue. This action was followed by the World Health Organization (WHO) in 2006 and by the United Nations General Assembly in 2008. In June 2011, the UNESCO House hosted the 2nd International SCD Awareness Symposium to pursue the action launched by the International Inaugural Ceremony of the 1st World Sickle Cell Disease Day held on June 19, 2009 at the United Nations Headquarters in New York City. By promoting collaboration among nations through education, science and culture, UNESCO plays a highly significant role in the multifaceted coalition that we all aim to assemble toward a global action plan for SCD.
The scientific committee is planning a stimulating program including plenary lectures, symposia and poster presentations. This will keep you updated with the latest advances in basic knowledge, diagnosis, clinical care, and emerging new therapies including updates for curative treatment options. Strong interactions with patient’s associations will promote information exchange about the impact of the disorder on patients, families and communities and display current options to implement the latest developments and to transform health systems.
We very much look forward to welcoming you in Paris next April.

Jacques Elion
National Institute of Health and Medical Research
Co-Chair